HumanCode Product Consent
Last updated on November 17, 2017
Thank you for your interest in HumanCode’s DNAPassport. We hope you enjoy your personal genomics explorer! Please read this Product Consent carefully before you start as you must agree to all provisions set forth. This Consent provides information on how you would use the DNAPassport application.
Table of contents
- What is DNAPassport?
- What are the steps involved in using DNAPassport?
- What is the science behind DNAPassport and what will it tell me?
- What are the potential risks and limitations of using DNAPassport?
- What are the potential benefits of using DNAPassport?
- How does HumanCode keep my genetic information confidential and private?
- Will my information be given out to third parties?
- What type of electronic information will I receive from HumanCode?
- What type of information is collected?
- How do I delete, modify, or close my HumanCode account?
- Who can I contact if I have questions?
What is DNAPassport?
DNAPassport is a fun, shareable app focused on self-discovery. It was developed as a gateway application; introducing you to the Helix marketplace and providing a way to familiarize yourself with DNA concepts.
Please be aware that DNAPassport is for entertainment and interest value only. We do not provide medical advice. We also don’t report genetic variations that have a known impact on your health or any medical conditions. You should always seek the advice of your doctor or other healthcare provider such as a genetic counselor with any questions you may have about diagnosis, cure, treatment, mitigation, or prevention of any disease or other medical condition or impairment or the status of your health. Behavior changes based on genetic information are not recommended. We also don’t warrant any actions that may arise from getting genetic information. Reliance on any information provided by Human Code, Human Code employees, others appearing on our website at the invitation of Human Code, or other visitors to our website is solely at your own risk.
What are the steps involved in using DNAPassport?
- You create a HumanCode account and answer a few questions about yourself.
- If you have not already had your DNA sequenced by Helix, you create a Helix account (Helix) and purchase a kit. Helix sends you an easy-to-use saliva collection kit in the mail which gets returned to Helix’s CLIA and CAP certified lab for sequencing.
- When sequencing is complete Helix sends the relevant DNA information needed by BABYGlimpse to generate your results.
- HumanCode uses a trait prediction algorithm to determine the ancestry and characteristics of you.
- HumanCode notifies you when your results are ready to view online.
What is the science behind DNAPassport and what will it tell me?
HumanCode scientists developed a trait prediction methodology that inputs well curated scientific information to make trait and ancestry predictions customized for you. Our team researched hundreds of scientific papers to find well-studied traits that were part of large, publicized findings with as much ethnic diversity as possible. This helped us narrow our focus to over 50 fun and informative traits. These traits range from physical characteristics such as eye color1-2, hair color2-3, adult height4-5, or being prone to freckles2,6 to preference indicators such as favoring sweet snacks2. For ancestry prediction, we use informative ancestry markers across your DNA to tell us where your family came from.
What are the potential risks and limitations of using DNAPassport?
The risks of using DNAPassport are minimal. While learning about your genetics is interesting, there may be irrevocable and unavoidable outcomes by knowing more about your DNA makeup. It could also lead to feelings of surprise, anguish, anger, fear and sadness because you may find out information that you didn’t want to know.
There is also a level of uncertainty when using DNA products. Genetic testing has its limits. Scientists have not discovered all the genetic interactions that are possible in our unique genomes. Given this, it is impossible to unequivocally relate your DNA code to your future. Environment, lifestyle, and chance function alongside our genetic predispositions.
Please be prepared for these outcomes and plan accordingly. Genetic predictions may not always be accurate and our trait prediction methodology is not error-proof. You must accept a level of uncertainty in the data. Results are often provided as an interpretation based on probability or risk.
What are the potential benefits of using DNAPassport?
Exploring your DNA is exciting. You are opening a world of information and learning that just a short time ago wasn’t possible. And if you consent to participating in our surveys to collect basic insights, you will provide critical information that will benefit our understanding of people, ethnicities, and genetic influence.
How does HumanCode keep my genetic information confidential and private?
You will have the ability to link with friends and family members through the HumanCode apps and website. Please be aware of what you share. HumanCode gives you the ability to connect with others who have HumanCode accounts. You can do so through our community forums and other sharing features. You may choose to disclose, through other means not associated with us, any part of your information to friends or family members, groups of individuals, third-party service providers, doctors or other healthcare professionals, or other individuals. You should make such choices carefully. Information, once released or shared, can be hard to contain. We will have no responsibility or liability for any consequences that may result because you have released or shared Information with a third party. Genetic Information you share with others could be used against your interests. The Genetic Information Nondiscrimination Act (“GINA”) protects your Genetic Information specifically from use by group health insurance providers and employers. It does not apply beyond these entities. For example, GINA does not apply to disability insurance, life insurance or long-term care insurance providers. Some states have protections for those types of insurance, so you should be aware of the laws in your state. If you choose to share your Genetic Information with these insurance providers, you do so at your own risk. Genetic Information that you choose to share with your health professional may become part of your medical record. That means it could be accessible to other health professionals and possibly health insurance providers in the future. If you share information on any forum or blog, or share it with a third party, that party may use it or disclose it in a way you didn’t intend.
Will my information be given out to third parties?
What type of electronic information will I receive from HumanCode?
What type of information is collected?
How do I delete, modify, or close my HumanCode account?
We strive to accommodate changes to your account as long as it does not violate any law or legal requirement or cause the information to be incorrect. Information that has already been pooled with other data may not be retrievable or traced back for correction or removal from any database.
If you no longer wish to participate in our Services, you may close your account by sending a request to Customer Support at email@example.com. When closing an account, we remove all personally identifiable genetic information from your account (or profile) within thirty (30) days of our receipt of your request. However, information (including personally identifiable genetic information) that you have previously provided and for which you have given consent to use will not be removed from ongoing or completed studies or business activities that use the information (such as anonymized or aggregated statistical information). In addition, we retain limited registration information related to your order history (e.g., name, contact, and transaction data) for accounting and compliance purposes.
Please note that HumanCode will have access to genetic information only related to our family of products. You must contact Helix (helix.com) if you wish to further delete all genetic data collected from your initial saliva sample.
Who can I contact if I have questions?
If you have any question, comments or complaints, please contact us at firstname.lastname@example.org or 800-208-4104.
By checking the box next to “I have read and understand the HumanCode Product Consent” during the HumanCode registration process, you consent and agree to the following:
- You are at least 18 years old.
- You allow Helix to share with HumanCode your DNA sequence for the specific genetic markers HumanCode has selected.
- You allow HumanCode to retain your data as part of HumanCode’s secure product development database, for use by HumanCode or its affiliates, to improve and expand services. If any commercial product is developed because of the use of your data, there will be no financial benefit to you.
- You may receive communications from HumanCode such as push notifications, emails, or other electronic correspondence to keep you current on new information.
- Walsh, S. et al. The HIrisPlex system for simultaneous prediction of hair and eye colour from DNA. Forensic Sci Int Genet 7, 98–115 (2013).
- Eriksson, N. et al. Web-based, participant-driven studies yield novel genetic associations for common traits. PLoS Genet. 6, e1000993 (2010).
- Branicki, W. et al. Model-based prediction of human hair color using DNA variants. Hum. Genet. 129, 443–454 (2011).
- Marouli, E. et al. Rare and low-frequency coding variants alter human adult height. Nature 542, 186–190 (2017).
- Wood, A. R. et al. Defining the role of common variation in the genomic and biological architecture of adult human height. Nat. Genet. 46, 1173–1186 (2014).
- Sulem, P. et al. Genetic determinants of hair, eye and skin pigmentation in Europeans. Nat. Genet. 39, 1443–1452 (2007).